Friday 14 May 2021

Bored

Im having a severely bored phase , despite the never ending gardening  which will start to lessen in the next couple of weeks , life is just tedium . I sometimes think i will go to my grave surrounded by shit and endless washing , Mr BH had a bit of a bad phase after his second jab . Today is my first freedom day for 3 weeks , you know hes not been well when he hasnt fished for 3 weeks . BIL has come to the rescue and off they have pottered to the fishing pit . Freedom day is to be spent trying to make head nor tale of the new DWP renewal of PIP form its not the condition report side of it everything has got worse , its his medical side of things , i have 5 years of medical records to go through to cross reference all the exact dates, umpteen medical letters from umpteen consultants to copy and link to the exact points in his medical notes , all because they now want exact dates at which each medical  condition started it would be easy if it was just one but ive realised that theres over 20 different things that are wrong with him ...AAARRRGGGHHH . 

Im also now a prisoner in the house because theyve upped one of my medications , this means i darent drive because it gives me blurred vision and dizzy spells , Ask  GP it would seem that cant be happening and it must be stress, funny read the leaflet in the box it warns about this.  I was in for blood tests last week and have had a load more this week only to have the health assistant going on about had i considered anxiety medication?  What to make me more compliant and not question every aspect of our medical care , musnt remind that theyve nearly killed my partner on a couple of occasions or that people who struggle to use their hands have a big problem with Ask GP ? . Im sorry i loath  health professionals who judge and the bleedin have you considered online mindfulness classes types . You just know they have a house painted white with inspirational quotes everywhere and a yoga mat in the corner gathering dust 

8 comments:

  1. Good luck. With your form filling. Life is a bugger at the moment

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  2. Of course the forms are made as difficult as possible so that most people would abandon them, clever aren't they.
    Briony
    x

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    1. normally i would turn it over to a professional , but sadly their are no professionals working at the moment and this is the new improved form that no one has tackled yet

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  3. Good luck with the form filling.
    I waited 14 months to 'see' a neurologist following an abnormal brain scan. I had a phone appointment with a consultant last month, followed by blood tests for 23 things, 22 of which have been tested for before. Still waiting for the appointments for a repeat brain scan, spinal cord scan, and actual out patient appointment he promised. And he told me he wouldn't start me on meds yet( how can he when he can't tell what is wrong??), and that he might never find out!

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    1. And that is my gripe , treating symptoms just masks what is actually wrong with you.

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  4. Hi Katie, did you mean that about a kit for Tom. I offered to buy him one but he declined, I think because he is ill he feels that he may not finish it and they are quite expensive. I hope he doesn't croak any time soon, lol. but you know men.
    I could email my address if you do have a kit, I know he would do it. my email is thecrowsnest55@yahoo.com
    Hope to hear from you.
    Briony
    x

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  5. Police asked me to see doctor because I had reported someone harassing me-I told him I didn't want to be drugged up and still be being bullied-he seemed surprised at my reaction.They then offered me therapy which involved tapping my head and arms and repeating"whatever they say and do it won't affect me"-I didn't like to be rude and so went along with it.Then talking therapy for me just became scoring one to five or was it ten-I stopped going.Later I was diagnosed by the hospital with hemiplegic migraine and refered to a neurologist who said "there are things as yet we do not know about the brain"and my stroke like symptoms" hopefully it will go away"and no medication at all x

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    1. Neurology have been one of the most useful departments we find , we go to a large teaching hospital and we find that they are always curious and go that extra mile

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