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Thursday, 17 August 2017

We're Off To See The Wizard

Well finally we got Mr Bah Humbugs Urgent Head CT results  , we also got to see the newest doctor at our GPs .  One who appears to be actually qualified , he came out of his office looked at MR Bah Humbug hobbling down the corridor and looked at me aghast .  Hes had a very bad week pain wise and one side of his body has visibly dropped yet again .  Hes mentally terrible, very irritated by things not working in his body and lashing out at everyone in frustration , one of those weeks when i want to run screaming for the hills .
So his head CT is perfectly fine , no stroke , no brain shrinkage, which has cheered up MR BAh Humbug a lot , it means he gets to keep his driving licence, not that hes fit to drive and not that i would let him at the moment , but the thought is there .
The Dr is referring us to neurology at Sheffield , which is where theyve been trying to refer him on and off for 3 years , hes had to lay it on heavy with the referral because most now get rejected at committee , we need to be careful not to see the GP who cancels all the referrals .
He was telling us there is now no Neurology , Mental Health or ENT service in the whole of Lincolnshire , he had a list of other hospitals the Nearest being Nottingham and Sheffield , we are familiar with Sheffield and Mr BH usually has to go there for his spinal problems . But as the GP points out this is a lot of use for the elderly and those without transport or much income , which is us im afraid , but he needs to go , so we will toddle off .
Well we got a visit from the Council this week about the rent , they were nice people and explained the decision  to us , apparently because we now have virtually no income , we must  pay half the rent each week , or rather my daughter must because her income is so high , this has gone down like a ton of bricks we have had teenage toddler tantrums of the first order , not bad for a 25 year old , shes told us shes leaving and taking her son with her , apparently her current car payments are more than me and Mr Bah Humbug have been living and running a house on for the last 2 years !!  Shes always paid into the house, bought a few groceries , paid for the water and took me on treats once a year , but i dont think shes ever considered just what having a home cost wise amounts to , you can cut the atmosphere with a knife , so i havent a clue what is going to happen , but if she doesnt pay they will start the eviction process at  the end of the month if she leaves they start the housing benefit again ...Bizarre
They then offered us food bank vouchers, yet again we refused the gardens running full bore now , plus we have to have appointments with Welfare Rights and The Council Debt Counselling Service . It seems there are quite a few people in this boat particularly in this area and it would seem its the same PIP assessor who has marked down everyone to nil points and blatantly lied through her teeth , the council is looking into it and have taken copies of the paperwork we have received .
I was once again told im daft for even trying to work , that i should be receiving carers allowance , which i cant get because of the PIP decision and that they will review the rent arrears in December . Its all very soul destroying , on one hand we have a Government bragging that Work Pays but in reality your far better off for sitting staring at a wall all day.

8 comments:

  1. As you know, Tom was out of work for many years due to ill health and we went through a lot of what you are going through now. When he was finally able to find a job we were a lot worse off financially and ended up running up a huge amoung on the card just to keep living. So, yes, you are correct, they don't make it worth working. Keep going Kate and in the end it will all work out okay, we are fine now but had years of the kind of worry you have. I think you are wonderful
    Briony
    x

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    1. im beginning to realise that im now in a whole new dimension , all the benefit programmes they conjure for propaganda on the TV dont even begin to scrape the surface of the labyrinth faced by the disabled .

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  2. You must have a Keep Calm and Carry On poster the size of a football pitch to be able to put up with everything that has been thrown at you recently. Along with a teapot the size of a bathtub! Can't offer you any advice, but just wanted to let you know that I, for one, have fingers and toes firmly crossed for you and I know that I won't be the only one. Tracy X

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    1. It really has come down to big decision time , I know I will have to give up work at some point to care full time for my partner , I just wasnt planning on it being now . But then to find i must do absolutely nothing else except care just to keep a roof over our heads is bizarre , no ebay no nothing, just twiddle my thumbs and be the poo fairy everyday . You can earn £111 pounds but it has to be in an employed position, theres not a lot of paid employment that allows the flexibility I would need as its appointments at the drop of a hat at the moment .

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  3. When my eldest daughter left home and got a flat she telephoned in shock that you have to pay for water! And why oh why was electricity do expensive. Welcome to the real world. I feel for you and hope you get the help you rightly deserve.

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    1. shes calming down a little now , but not much ...lol I think its the childcare factor , her son is a bit of a monster and can no longer at 8 go to holiday clubs , hes just to sarcastic for childcare workers im afraid . Who else but Granny can cope ? lol

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  4. What makes me upset that all those "case workers" are paid extremely well for doing very little and making life misery for a unfortunate.Is that what a decent man gets for all the years he worked.Take care ,wishing you well.

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    1. we now have several , theres supposedly a meeting on Monday for them to decide what to do about us , love to be a fly on the wall at that one

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