Thursday 30 November 2017

Heat On The Horizon?

Theres a little ray of sunshine on the horizon we may have a little heating oil for xmas , the cold in this house is killing me by inches . After the nasty snot bug we have all had , including Mr BH who has cracked ribs yet again but cant get a doctors appointment . The munchkin coughing so much he was sick and had to stay off school , and my  post viral asthma making me so breathless , something i get after colds , we are like march of the zombies .  We just keep a tiny oil filled radiator on all the time to keep the living room warm for Mr BH.

The DWP are asking for yet more information as to why im not working more hours plus they want more information that theyve had at least 3 times , so thats a weekends work to get on with ...lol ..
Im so sick of Mr Bah Humbug saying "when this is sorted out we will be fine " Ive long understood that it will never be sorted out , this is the future of daring to become disabled in this shitty country , endless debt and contempt from those just one rung up on the ladder . .

We had visitors from the council yet again the other day , they wernt happy that we have no heating , they want to fit a new energy efficient boiler , which it seems is going to be a big job , theyve gone back to the council gulag to consult with the council caseworker we have never seen or heard of since she was appointed , the one who never responds to the messages you leave etc etc . I wish them luck ...lol

Then we went to see the wizards at the Royal Hallamshire about the odd problems Mr Bah Humbug has , lovely lady was seen , suitably appalled that we have to travel that far when theres a neurology outpatients at Lincoln. even more appalled when she found that Mr Bah Humbugs notes consisted of half a dozen sheets only about his suspected stroke in June , it seems that this multi million pound computerisation of all our files means that even a consultant at a huge teaching hospital cant access anything from another health authority  and can only access 6 months worth without a huge wait and a special request ..bizarre , she couldnt even see any of his scans so they all have to be repeated at Sheffield next week along with some others , so thats another £30 journey .

The gist of the visit is that she thinks he has migraine with aura , we hope he has anyway but then she took him away for a physical exam came back and asked about his suspected stroke , asked why he had only had a CT scan weeks later , why he hadnt been referred urgently to stroke services etc etc. I had to explain that there is nowhere to send him to currently in Lincolnshire except for extreme cases.

Her comment
 Why am I surprised , my parents live in Wales and its just as bad . Centralised services mmmm...it just means that unless you live in a city there will be no healthcare .

So the result of the trip to the wizards ....he musnt drive , he may be having micro strokes , they wont inform the DVLA until he has a firm diagnosis .  But I must make sure he doesnt drive , not that he has being doing for a good few months . Hes got to go on a migraine regime , something i havent looked up yet , just to see if it stops the aura .

Sounds like progress , until yesterday when i had to ring our GP to request his sedation for the scans , spoke to the receptionist and explained who refused an appointment and told me that we had to submit a written request from the consultant in Sheffield because it isnt our Healthcare Trust  ..AARRGGHH spent most of the morning on the phone trying to do that ,eventually spoke to the consultants secretary ,  but the consultant isnt back on shift till Friday , theyre going to ring us then and we will go from there.
So explain this to me why are they sending folks all over the country to see specialists when nothing is coordinated to let the specialist do their job ?

Thursday 23 November 2017

And Then

I have noticed that i tend to get more viewers the more miserable my life becomes , is that because of the Eastenders effect? The more miserable life is the better it makes you feel about yours ? I do wonder , but then again some of you been visiting for years and are a wonderful supportive bunch .
Things have took a grim turn yet again , wage slip due to illness this month wont cover the cost of running the business . So income zero for both of us and its xmas , im glad we dont celebrate except for a turkey dinner , which is languishing in the freezer , its going to be fully frozen this year and all i will need is a bit of fresh veg .
Im expecting the bank to shut down the business in the next 30 days , ive broken my agreement by not earning enough ..ho hum ...plus there was the news that the DWP have finally clarified the rules for self employment and universal credit , you must work at least 35 hours and have an income after expenses of at least £1700 and something a month , something ive not achieved since Mr Bah Humbug took a turn for the worse , if i was getting Carers Allowance I would have to work 24 hours a week on top , so theyre saying i must care 35 hours a week and also work 24 hours a week , so you must work 59 hours a week to qualify for any help at all????  Plus theres the fact that I work far more than 35 hours a week caring , im up 3 to 4 times a night at the moment , with his endless nosebleeds and toilet trips and helping him back into bed after he falls out and being punched and kicked over and over , one of the things your not supposed to mention if youre a carer,  im struggling to fit work around the Drs and Hospital appointments and it looks as if im going to have plenty of my own shortly .
Then to make matters even more fun , we had a really odd council surveyor turn up peering through our windows , strange bloke a bit like Jacob Rees Moggs younger brother . But it would seem that he had been sent to investigate the "claims" that we dont have double glazing ..lol  I explained the whole sorry tale about how none of the houses in this street that were council houses had double glazing and that the council actually accused us of stealing and selling the double glazing , he looked at me gone out until my next door neighbour come out and had a go about it, they have lived here through the whole fiasco , the council paid for double glazing and the fitters put in single upvc windows about 15 years ago and somebody at the council signed them off as double , when this was finally admitted 5 years ago, they promptly fitted double glazing in the 2 pensioner properties and left our 4 houses with the single glazing . Now the problem is that the new folks over the road have a premature baby whos stuck in hospital because there home isnt up to Letable home standard which states they must have double glazing in when a tenancy is granted , I was already aware of this because im an evil old gossip but the man from the council says they can only fit new windows every 30 years and they dont get any more money from central government for refits . Unless theyre vulnerable tenants , I pointed out my partner and the fact that my neighbour collects her pension in February , so hes off back to see what he can do , but being a surveyor he had a good root round and was suitably appalled at some of the so called repairs that have been done and the fact that a lot of the repairs that have been signed off have never been done . So we have them coming to do the gutters and roof repairs that they have signed off as been done  on all the houses tomorrow , under the actual councils supervision , the painting up outside that has been signed off twice is going to be done in the spring , we have a meeting about the heating tomorrow , should be a laugh as we have none due to lack of funds.
The one he really liked was the window they had fitted kitchen cupboards over the top of without removing and bricking it up .....have fun folks

Thursday 16 November 2017

Poverty Plans

Today we shall discuss the coming of the Apocalypse ...aka ...Universal Credit , we are fortunate that its not scheduled till next July here , the first big push starts at the end of the month in a lot of areas .
Never in the history of mankind has a good idea been so badly organised , when it was first announced there was supposed to be huge cost savings by combining all the benefits together , quite a good idea .  Then the Tory Party gave the job to various cronies and American companies and it has turned into a witch hunt on the poorest and most vulnerable .
Number 1
The Housing Benefit scandal
they are no longer going to pay peoples rent direct to the landlord , already every to let sign going up has  No DSS on it , this should be shut down hard , its discrimination the like of which hasnt been seen since the 70s , the good old days of landlords evicting people because they were poor or disabled . Doubtless we will have loads of programmes to cheer up my mother along the lines of Benefits and Bailiffs because there all scroungers out there .
Number 2
The 2 child rule
You will no longer be able to claim anything extra if you have more than 2 children . Seems fair enough why would you want more kids if you cant afford them . This was supposed to only affect those who were born after a certain date . What they forgot to mention is that any change to your benefits means that those who already have more than 2 children will lose the portion of their benefits for the extra kids so thats a whole generation blighted because they are worthless .Also is it 2 kids to one mother ? or will men still just wander around breeding any old how . My mother will enjoy Benefit Breeders the new tv programme or have they not already done that one ?

Now I will get out my crystal ball and look to the future ..lol
The Government has decided that due to the single child rule each teenager must care for 10 frail elderly , while holding down a 60 hour working week at the incontinence pad factory  .  this of course is a good thing , they will inherit all the belongings and property of the elderly they care for . After 90% death duties of course .
Due to the lack of low skill labour the rich will be buying foreign staff from Amazon, thats if they can find any foreign staff who are willing to come here ..
I could go on and on and on , but instead heres a pretty knitting pattern , from the days when you could have kids ,stay at home and be a mother , cook wholesome food and be everything that the feminist sisterhood fought against


Saturday 11 November 2017

Still Here

Ive survived my latest brush with the NHS , first day back at work yesterday , ive been working from home all week , code for making a token effort online while feeling like death, got to see the Dr next week just to keep him happy , so we will see .
Poor old Mr BH is baffled as he says . Im the one whos always ill !!!! .  Just to make matters better I had to do an urgent Tesco Online shop with what wages i had , I quickly realised this lot arent capable of any kind of budget shopping or cooking , so the freezer is full of everyday sausages , nasty pies , crap burgers etc etc , but the simple fact is that if im not here they will order takeway which at its cheapest is what i would feed the family for a week on  , then be whining at the doors of the foodbank for the next month.
The Tesco online shop went well , try putting tesco cat food into the search bar if you want a laugh , among the cat food you get Regal cigarettes and a glorious pink Barbie car?? So our cat has some strange wish list on there?
The poor old cat isnt happy with us , she was neutered courtesy of Cats Protection this week , she finally found her howl when i dropped her off then started her howl again when i took her for her check up ..lol  ..so much for the she will be sleepy for a couple of days mantra , she came home leapt out of her cat basket shot up the curtains and proceeded to hiss and spit at us all evening from on high . now she hates us all..lol
Caseworker came back from her holidays to find theres been no progress at all with anything , it would seem Mr BH has another different medical for ESA next week that we had heard nothing about , what a surprise , so she is taking him for it . I wish her luck as his walking is once again dire , his nose is bleedin constantly and they think hes popped his ribs again . This is his Fit For Work Medical...lol  He just wants to go back on his flexible learning programme at the college a couple of hours a week when hes up to it , but they wont fund it unless hes in certain criteria . Im just worried that once again they will find him fit for work , then we have the whole rigmarole of the Job Center again with its 2 disabled parking spots and nowhere else you can park for miles .  Hes unable to attend unless i go with him , if the lift isnt working he cant manage the stairs and it just turns into a whole demeaning circus for him . complete with security escorting him 12ft from the front door where they are no longer liable if he tumbles , they cant help him in any way just ring for an ambulance . 
We shall see ...............

Saturday 4 November 2017

Sick Note

Ive been excused from blogging on the ground of sickness , its been fun ,,....not
Mr Bah Humbug has had a fun week with a camera down his throat , they have found something and taken biopsies , we await with interest . We have also found that his little procedure last week has actually made one of his problems worse so hes looking at surgery and to finish him off his flu and pneumonia jab made him really grotty .
So ive spent a whole week pre payday , trying to fit work around this , with no fuel bugger all in the house to eat and no heat at all ,because we need to keep the lights on .
I actually went to the GPs and saw the new little boy GP , turns out hes an ex army medic so more on my wavelength we had a 5 minute  appointment due to the other GP keeling over at the morning surgery !!
You need to go to casualty
No chance they cant do a lot , 30 years of abdominal surgery tons of scar tissue and adhesions , digestive system runs like a sack of spanners but i manage .
Right try this , huge dose of antacids every two hours , this should stop your digestive system in its tracks take them till monday morning then ring me if youre still here . Youve no fever , no vomiting everything is coming out the other end ok  so youve not perforated , merely damaged or inpinged somewhere in there .  If you were a man you would be rolling on the floor in casualty by now . I will be amazed if your not in hospital by Monday ...Good Luck
Its Saturday morning im still here ...lol